We are thrilled to announce the launch of our revamped website just in time for his 13th birthday!
This website is dedicated to providing support, information, and resources to families affected by Spina Bifida and Hydrocephalus.
About Noah : Noah was born in March 2012 He was diagnosed with Spina Bifida from early on in the pregnancy and as time progressed there became more complications, it became apparent that Noah was missing a back quarter of his brain, would be paralysed from the chest down, the Spina Bifida was thought to be so large that they would not be able to close the gap.
There was also a chance he would have Down syndrome as we never had the test due to there being a chance of miscarriage.
As well as the above Noah also has a chance of having Edwards Syndrome “Edwards syndrome is a chromosomal abnormality characterized by the presence of an extra copy of genetic material on the 18th chromosome, either in whole or in part.
The additional chromosome usually occurs before conception.
