We are thrilled to announce the launch of our revamped website just in time for his 13th birthday!
This website is dedicated to providing support, information, and resources to families affected by Spina Bifida and Hydrocephalus.
About Noah : Noah was born in March 2012 He was diagnosed with Spina Bifida from early on in the pregnancy and as time progressed there became more complications, it became apparent that Noah was missing a back quarter of his brain, would be paralysed from the chest down, the Spina Bifida was thought to be so large that they would not be able to close the gap.
There was also a chance he would have Down syndrome as we never had the test due to there being a chance of miscarriage.
As well as the above Noah also has a chance of having Edwards Syndrome “Edwards syndrome is a chromosomal abnormality characterized by the presence of an extra copy of genetic material on the 18th chromosome, either in whole or in part.
The additional chromosome usually occurs before conception.
Our Mission The mission of Hugs for Noah is to provide hope, support, and resources to families affected by Spina Bifida and Hydrocephalus. We believe that every child deserves a chance to reach their full potential, and we are committed to helping families make that happen.
What's New on the Website?
Our new website contains a wealth of information and resources for families, including:
*Free party planning content: Everything you need to plan and host a fun and memorable party for your child. *
Information on Spina Bifida and Hydrocephalus: Up-to-date information on these conditions, including diagnosis, treatment, and support.
*Noah's book: Noah's first book, "A Day at the Zoo," is now available for purchase on the website.
*Message us in the blog: A place for us all to connect with each other and share experiences.
*Donation page: A secure way to donate to Hugs for Noah and help us continue our work.
*Get Involved : We invite you to explore the new HugsforNoah website and learn more about our mission.
You can also connect with us on social media or subscribe to this blog to stay up-to-date on our latest news and events.
Together, we can make a difference in the lives of children with Spina Bifida and Hydrocephalus.
#HugsforNoah